Welcome to my website. I hope that you'll be inspired because I've found that there is life after a diagnosis of Motor Neurone Disease. I believe that I've achieved more in my 10 years with this illness than during my life before MND. "The need for change bulldozed a road down the center of my mind". Maya Angelou

Wheelchair Smiley by Simon Donnelly

Please leave a comment for me!

Comments

  1. sarah, good to "know" you. You are blessed that you can still stand. I cannot stand, walk, eat, speak,shallow breathing, but I do have some use still of lower arms and hands. I am interested inhow you "talk". soon I am afraid I won't be able to use my hands. I have hospice too....they are wonderful. God Bless you. Keep up the fight and pray for a cure!

  2. Hi Sarah, the advert is such a great awareness raising tool and its censorship is scandalous. I've no doubt that you will keep battling for it to be shown in its entirety and I hope Clearcast wake up and smell the coffee. Best wishes, Paul

  3. Hi Sarah, glad to have found your site. I'm impressed with your movie and your personality. thanks, Hans, The Netherlands

  4. Sarah the princess!

    Thanks for all you've done about ALS MND.

    Someday We'll celebrate the day of finding cure for sure.

    Best wishes, Alper

  5. HI SAHRA, I WAS DIAGNOSED IN JAN AND I HAVE 5 MONTHS TO GO. I THOUGHT URE VIDEO ON MDS SHOULD HAVE WON MANY AWARDS. I LOVE IT. SO POWERFUL.

    I AM LOOSING STRENTH EACH DAY. IT'S SP FRUSTRATING TO ACCEPT MY LIMITATIONS. TOU ARE MY INSPIRATION TO CONTINUE, THANK YOU SARHA.

  6. Hi Sarah! You are a great twitter buddy! My full love and support go to you in your every endeavor. Thank you for your strength to speak up and out!

  7. Sarah,

    You continue to inspire me!!!

    Have so enjoyed connecting with you via facebook. You face your challenges and this horrible disease with such determination but with grace also!

    United we will support each other and find treatments and a cure!!!!

  8. My dearest Sarah, I am in awe of you! You may not realize it yet but you have already beat MND/ALS. You are a true inspiration. My Dad was Diagnosed 2 months ago with ALS and I have been so desperate to find that he was misdiagnosed or find a quick cure that it has taken over my life. Then I come across your story and realized that we Can beat this diease! The real cure is in our hearts and minds..bless you and please keep in touch...Much Love, Melissa

  9. Thanks for have the possibillity to read what you have find out about this disease..You are a strong woman..All my thoghts and respect for you..

    Best regards Lene

  10. Sarah

    Wow. You have a spirit that all of mankind should live by. Your spirit has already generated waves of Love, Passion and Affection from us to you....You are incredible

    Ian Kleinberg London England

    18 08 2009

  11. I can never find the words to say my respect and admiration for you. I am proud to be in the ranks as a fellow pals with you. love and respect always my friend............................

    JENNY HOFF SPOKANE WASHINGTON USA

    PALS APRIL 2006

  12. Hi Sarah i have been speaking to you on facebook and i believe these pictures on hre show you are gorgeous my dad has mnd and thinks you are a inspiration aswell speak to you soon Holly xxx

  13. Your story is a total inspiration Sarah !

  14. I KEEP YOUR UTBE PERFORMANCE OF MND ON MY HOME PAGE ON FACBOOK. I ENCOURAGE ALL MY FRIENDS TO VIEW IT AND WHAT A STRIKING AND ARTFUL PERFORMANCE. THANK U AND KUDOS TO YOU AND EVERYTHING U DO!

  15. Wow - brilliant! I remember being blown away by the amazing movie (my brother Paul linked it to me about four months ago), but the Making Of video was also very moving and inspirational. I'm so sorry the TV types are scared of it - it was kind of the idea to be terrifying (duh!). Fantastic website all the way 'round - great job and inspirational, as usual.

    Very best regards.

  16. Beautiful Sarah~ Thank you so much for your strength and inspiration. My mom has been diagnosed with ALS. We live in the U.S. and I have seen your movie. Its so powerful and it really allows me to try and understand what my mom is going through. What advice would you give a caregiver to a MND survivor? I get frustrated that I cannot do more for my mom and wondering what more I can do for her. Any advice would be appreciated. Thank you for being you.

    Hugs,

    Briana

  17. Sarah you brave brave lady an absolute inspiration, I have a tear in my eye not from sadness but sheer admiration. An excellent site and also an eye opener, thank you for sharing x

  18. Can I just say Sarah, that having looked through your site, you truly are an inspiration to us all. And the site looks great!

  19. Hi Sarah, I have heard about you from my friend Sue Field, who has shared with me some of your journey with MND, I would like to say thank you for the inspiration you have been to my friend xx

  20. hi Sarah, reading your story makes me realise how lucky i have been. my husband and adult daughter have been supportive all the way through and have kept me from falling into depression. i have been realising lately how awful it would be to add depression to the mix. we all have you as a wonderful positive focus. you can't begin to know how many lives you have touched, bless you for this and all your amazing work xxx

  21. wow! - what a fab website - you truly are amazing - an inspiration to all - so proud to call you my friend xx

  22. I love your website -you are one of the most special people I have ever had the priveledge to meet and I am so glad we are friends - you give me and so many others so much inspiration and strenght for the future - my love always Sally-Ann xxx

  23. love your site! keep blogging...you are an amazing woman!

  24. Hello beautiful friend!! Wonderful site & blog! You are a true hero and are helping so, so many. You are an inspiration for showing others that you can "stand up" and make a difference. With love & hugs xo

  25. Hey Sarah! This is great! Keep up with the blogging - you're a great writer and I will keep reading it! Hope Aviva is ok - fingers crossed it is just a summer cold. Love Charlotte x x x

  26. Great websiteSarah! You are a true inspiration and I am so proud to call you my friend. Love you lots, Shireen xxx

  27. Sarah, a true inspiration. A very special lady who deserves all good things. May your illness never get any worse and hopefully a cure can be found to help you and others in the future. With all good wishes. Anna Etzioni (Gilbert)

  28. so glad its all come together for you. fantasic work. well done xxx

  29. Fantastic work. I think you are great !

  30. Great site, and fabulous work all round. You have the gift of challenging people's assumptions in a creative and unavoidable way, and to think outside the box.

  31. A triumph of the spirit...You are an amazing woman Sarah! x

  32. We are all stupid :) I admire you

  33. Awesome! I am happy you got this up! your handy work is inspiring

  34. Sarah- You are just amazing!

  35. Wonderful site sarah, such an inspiration. xxx

  36. Fantastic Sarah, i can't believe how fast you've put this together.

    I think you are amazing xxx

  37. Well done Sarah , with your website , and with your brave and courageous outlook .

    I was diagnosed in March 2009 and hope to be here in years to come too . xxx

  38. Fantastic stuff Sarah and for someone fairly recently diagnosed, I really like the sentiment in your statement, much love Sue Field x

  39. Wonderful job!

  40. Very good Sarah. Wonderful job as usual.

  41. hey sarah. well done with the website. keep up the good work .. lots a love!!! Kate xxxxxxx

  42. You are an inspiration Sarah - love you lots. Ruthie

    xxxxx

Sarah Ezekiel

 

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