'The need for change bulldozed a road down the center of my mind'.
Good day, Sarah! Yesterday you saw on the video, as you learn to live and benefit the people, I want to ask you for help for my friend. His name is John, he is a Russian young guy chetvre years ago ill ALS, his wife left him after learning of his diagnosis, enrolled him in a nursing home, he is now some-how can move the mouse on the screen, but harder, he would have been very helpful in his situation, such a computer as uvas, and he can not speak, he needs a speech synthesizer, I cry, and I can not help, I'm not rich and pay the loan if you know the charity funds to help these patients, help with Ivan Leybe kompbterom and speech synthesizer. Here's a link to classmates, there's pictures, photo from the hospital with a diagnosis, medical records, his medical history. Here's my phone 89504373568 and 89293326240.
You are amazing!
My wife was diagnosed with MND 2 years ago and now she has lost the use of her arms and legs and her speech is very slurred. She has just been assessed by the Speach team from the Neuro Centre at Putney and she will be getting soon an eyegalze screen. The team mentioned all the good work you do a suggested we get in touch.
Lost my partner just over 2 years ago to MND and he had taken the step to communicate with you Sarah . You were somone who helped him by helping him understand what he had. Siobhan xx
Dear Sarah, I echo what Graham has said "You are indeed an inspiration to many." How are you? Kind Regards.
Hi Sarah, just wanted to say that you are an inspiration to people. I just visited the Daily Mail website where I saw many of your paintings and you have your own exhibition. That is something to be proud of. Brilliant!
Blessings to you, Sarah. Found you on InspireMeToday.com - and you have.
Hi. I'm Zewdei Gebremedhin.
U got the shine on you Sarah :)
I have written before, I will write it again. You are indeed an inspiration to many. Continue to lead from the front. My thoughts are with you and yours.
Hi Sarah, I think you are fabulous! You are a selfless, giving wonderful person! Keep up the great work, you are amazing for raising public awareness of MND!
u are an inspiration. hopefully you can help raise awareness for this terrible disease.
Sarah - you are fantastic! Superb radio interview. Thank you for brightening up my day with your terrific artwork and insiring me with your courage and optimism.
Sarah, you truly are an ispiration and a beautiful human being, to donate the proceeds of your work to others is such a selfless act, I know your work and love it
heard the article today on radio four. I'm sure you're an inspiration to both fellow sufferers and to the rest of us. Your work is great and the Tears are particularly moving having heard the article. Do you have an online sales site for your work?
Hi Sarah. like your last link just heard you on Radio 4 I agree what an inspiration you are. Good Luck with the art show lovely pictures. and from your pictrues you look fab and so happy, Good Luck with the future.
Hi Sarah. Wonderful just wonderful! I've just been listenitng to an item about you and your art on Radio 4 You and Yours. You are inspirational and I love your art work. I'm sharing this links with our group and other friends. Keep up the good work. I hope you achieve your Christmas target and keep on making such a fantastic contribution to art, technology and positive living. Thank you.
Hi Sarah. Are you the Sarah I went to cheder with at Bevis Marks/Lauderdale Rd? My maiden name is Nunes Vaz. I live in Walthamstow and I understand you're exhibiting as part of the Art Trail this year. I was running an event today; will try and get down to see it. x
Years of admiration Sarah. I feel as though I know you. You are an inspiration to us all.
Three weeks after a flu shot my mother was diagnosed with severe arthritis ,then over a year later MND (brain & spine). She only lived less than a year after that.
The one saving grace in knowing what was to come, was that I had time to say I love you and thank you mum. We also shared a lot of laughs, even near the end.
It made me realize how much the rest of us waste time staring out of windows when that is all some people are capable of.
Thinking of you and your family
I am familiar with the disease (ALS). My mother was sick a year before she died last March 2010. I wish you courage and I think very much to you and your family. All my best. Yours sincerely.
I'm trying to find answers since my daughter Keri died at 29, after a year's diagnosis. Can you tell me how far from pregnancy your symptoms started? Did you have any root canals before symptoms? Flu shot, yeast problems, EVER had Mononeucleoisis? thanks Sarah. I know there are connections, and I can't get researchers in the states to so much as reply. Thank you for your time. I have your video linked on Keri's website.
my brother has mnd an we only found our few weeks ago an we dnt no wot 2 do his only 20 an its really sad that he has 2 feel like this.. its not fair.. if there is something that cn help him plz tel us..
I have been totally inspired and deeply moved by your story Sarah. Thank you so much for sharing it with the world.
Love from Nancy (Canada)
Love your work - opened my eyes to MND. Deeply impressed with your drive and purpose. Keep strong. X
Keep going Sarah, you are an example to many, many people.
Love from Belgium.
My granddaughter Michelle told me your story today, and I am deeply touched.
I will hold you in my thoughts and prayers. May the good Lord bless you.
Hang in there, brave Lady. So many are rooting for you.
From Texas with love
Ok - You were totally awesome in 2009 - but just wait until they see what you will do in 2010! WOOT! GO SARAH!!
Sarah has entered the 'Social Media Ad Campaign' category as she is running an advertising campaign via social media ... if you think she is in the wrong category then you have a lot more issues than your blatant lack of compassion. Whilst I do not agree with some of the content of the short film/advert, I totally disagree with Clearcasts decision to only show the advert on TV if all images of twisted limbs are removed. They are paramount to demonstrating the effects of MND so to remove them would render the advert useless. Madness
Your courage inspires me! Thank you for making a difference in my life. I am proud to call you friend and you are my HERO! xx
Forget about Fernando Sarah, the fact you are getting attention from the bitter and the jealous shows you're making waves. Keep going, you are making a difference.
I LOVE YOU, Sarah! You are amazing beyond words.
I totally agree with TRACY! Fernando is an ignorant person! MOTOR NEURON DISEASE is something that more people need to be aware of because it can HAPPEN TO ANYONE AT ANYTIME!!! There's NO CURE and NO TREATMENT. My mom suffers from it and i want to THANK SARAH for being BRAVE ENOUGH TO MAKE A VIDEO AND SHARING IT WITH THE WORLD!! It's because of IGNORANT/DISGUSTING people LIKE YOU FERNANDO that people with MND lose HOPE!!!!! You are an IDIOT!!!
my god what a ignorant twat fernando is , he just doesn,t get the point, he obviously is totally ignorant of facts and brains !!! hopefully he will never encounter MND but if he does then maybe he will change his way of thinking ! what an UGLY person he is!!!!!!!!!!
I wont vote for you because you are in the wrong category! What does sickness have in common with social media AD campaign?? It s very ugly to see how you sell your sickness to get votes.
sarah - i think of you often. you give me strength, and remind me why I must stay focused and vigilant each day. We'll ride Boston to NY till they #endALS!
I found your site through the Mashable Open Web Awards. Your video and achievements are amazing. Best of luck!
What's up Sarah?!
I am happy to vote for you. I have never heard of this disorder. There should be more public awareness so that research can be funded.
Your commercial was on point! Sometimes, you have to be graphic in order to drive a point home. Fight on1
sarah, good to "know" you. You are blessed that you can still stand. I cannot stand, walk, eat, speak,shallow breathing, but I do have some use still of lower arms and hands. I am interested inhow you "talk". soon I am afraid I won't be able to use my hands. I have hospice too....they are wonderful. God Bless you. Keep up the fight and pray for a cure!
Hi Sarah, the advert is such a great awareness raising tool and its censorship is scandalous. I've no doubt that you will keep battling for it to be shown in its entirety and I hope Clearcast wake up and smell the coffee. Best wishes, Paul
Hi Sarah, glad to have found your site. I'm impressed with your movie and your personality. thanks, Hans, The Netherlands
Sarah the princess!
Thanks for all you've done about ALS MND.
Someday We'll celebrate the day of finding cure for sure.
Best wishes, Alper
HI SAHRA, I WAS DIAGNOSED IN JAN AND I HAVE 5 MONTHS TO GO. I THOUGHT URE VIDEO ON MDS SHOULD HAVE WON MANY AWARDS. I LOVE IT. SO POWERFUL.
I AM LOOSING STRENTH EACH DAY. IT'S SP FRUSTRATING TO ACCEPT MY LIMITATIONS. TOU ARE MY INSPIRATION TO CONTINUE, THANK YOU SARHA.
Hi Sarah! You are a great twitter buddy! My full love and support go to you in your every endeavor. Thank you for your strength to speak up and out!
You continue to inspire me!!!
Have so enjoyed connecting with you via facebook. You face your challenges and this horrible disease with such determination but with grace also!
United we will support each other and find treatments and a cure!!!!
My dearest Sarah, I am in awe of you! You may not realize it yet but you have already beat MND/ALS. You are a true inspiration. My Dad was Diagnosed 2 months ago with ALS and I have been so desperate to find that he was misdiagnosed or find a quick cure that it has taken over my life. Then I come across your story and realized that we Can beat this diease! The real cure is in our hearts and minds..bless you and please keep in touch...Much Love, Melissa
Thanks for have the possibillity to read what you have find out about this disease..You are a strong woman..All my thoghts and respect for you..
Best regards Lene
Wow. You have a spirit that all of mankind should live by. Your spirit has already generated waves of Love, Passion and Affection from us to you....You are incredible
Ian Kleinberg London England
18 08 2009
I can never find the words to say my respect and admiration for you. I am proud to be in the ranks as a fellow pals with you. love and respect always my friend............................
JENNY HOFF SPOKANE WASHINGTON USA
PALS APRIL 2006
Hi Sarah i have been speaking to you on facebook and i believe these pictures on hre show you are gorgeous my dad has mnd and thinks you are a inspiration aswell speak to you soon Holly xxx
Your story is a total inspiration Sarah !
I KEEP YOUR UTBE PERFORMANCE OF MND ON MY HOME PAGE ON FACBOOK. I ENCOURAGE ALL MY FRIENDS TO VIEW IT AND WHAT A STRIKING AND ARTFUL PERFORMANCE. THANK U AND KUDOS TO YOU AND EVERYTHING U DO!
Wow - brilliant! I remember being blown away by the amazing movie (my brother Paul linked it to me about four months ago), but the Making Of video was also very moving and inspirational. I'm so sorry the TV types are scared of it - it was kind of the idea to be terrifying (duh!). Fantastic website all the way 'round - great job and inspirational, as usual.
Very best regards.
Beautiful Sarah~ Thank you so much for your strength and inspiration. My mom has been diagnosed with ALS. We live in the U.S. and I have seen your movie. Its so powerful and it really allows me to try and understand what my mom is going through. What advice would you give a caregiver to a MND survivor? I get frustrated that I cannot do more for my mom and wondering what more I can do for her. Any advice would be appreciated. Thank you for being you.
Sarah you brave brave lady an absolute inspiration, I have a tear in my eye not from sadness but sheer admiration. An excellent site and also an eye opener, thank you for sharing x
Can I just say Sarah, that having looked through your site, you truly are an inspiration to us all. And the site looks great!
Hi Sarah, I have heard about you from my friend Sue Field, who has shared with me some of your journey with MND, I would like to say thank you for the inspiration you have been to my friend xx
hi Sarah, reading your story makes me realise how lucky i have been. my husband and adult daughter have been supportive all the way through and have kept me from falling into depression. i have been realising lately how awful it would be to add depression to the mix. we all have you as a wonderful positive focus. you can't begin to know how many lives you have touched, bless you for this and all your amazing work xxx
wow! - what a fab website - you truly are amazing - an inspiration to all - so proud to call you my friend xx
I love your website -you are one of the most special people I have ever had the priveledge to meet and I am so glad we are friends - you give me and so many others so much inspiration and strenght for the future - my love always Sally-Ann xxx
love your site! keep blogging...you are an amazing woman!
Hello beautiful friend!! Wonderful site & blog! You are a true hero and are helping so, so many. You are an inspiration for showing others that you can "stand up" and make a difference. With love & hugs xo
Hey Sarah! This is great! Keep up with the blogging - you're a great writer and I will keep reading it! Hope Aviva is ok - fingers crossed it is just a summer cold. Love Charlotte x x x
Great websiteSarah! You are a true inspiration and I am so proud to call you my friend. Love you lots, Shireen xxx
Sarah, a true inspiration. A very special lady who deserves all good things. May your illness never get any worse and hopefully a cure can be found to help you and others in the future. With all good wishes. Anna Etzioni (Gilbert)
so glad its all come together for you. fantasic work. well done xxx
Fantastic work. I think you are great !
Great site, and fabulous work all round. You have the gift of challenging people's assumptions in a creative and unavoidable way, and to think outside the box.
A triumph of the spirit...You are an amazing woman Sarah! x
We are all stupid :) I admire you
Awesome! I am happy you got this up! your handy work is inspiring
Sarah- You are just amazing!
Wonderful site sarah, such an inspiration. xxx
Fantastic Sarah, i can't believe how fast you've put this together.
I think you are amazing xxx
Well done Sarah , with your website , and with your brave and courageous outlook .
I was diagnosed in March 2009 and hope to be here in years to come too . xxx
Fantastic stuff Sarah and for someone fairly recently diagnosed, I really like the sentiment in your statement, much love Sue Field x
Very good Sarah. Wonderful job as usual.
hey sarah. well done with the website. keep up the good work .. lots a love!!! Kate xxxxxxx
You are an inspiration Sarah - love you lots. Ruthie
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